They Left Us Everything

They Left Us Everything, Plum Johnson’s account of her parent’s illnesses and deaths, is refreshing in its candor and will resonate with anyone who has gone through something similar. She’s candid, too, about her family.

Plum grew up in Singapore, Virginia, and finally Canada – which was a compromise for her British father and American mother. Her parents spent the ends of their lives in the family home on Lake Ontario. Her mother was from Virginia – her ancestors and cousins were attorney generals and ambassadors. While her mother was exuberant, eccentric, and a writer of letters and a copywriter in her youth, her father was British, reserved, and quite eccentric, as well. Their relationship endured but was volatile and complicated.

Plum and her three brothers all have skills, roles and competencies related to caregiving. Some are hands-on and some help at a distance with financial, legal and real estate matters. Sibling Suppers are mostly supportive and cooperative, but, as she is the oldest, divorced, single, and the daughter, Plum is most directly involved in her parents’ care and the settling of the estate.

Plum sometimes compares her life at 63 with her mother’s relative freedom at the same age.  She details the steps and the incredible energy and patience it takes to do routine tasks – like going to the mall. Just reading the description is exhausting.  “It feels as though the last twenty years have leached out my patience, my empathy, my compassion – the best parts of me- until I feel unrecognizable, a person I don’t like very much.” “Nineteen years, one month, and twenty-six days of eldercare have brought me to my knees.”

The house is as much a character in this book, as her various family members. Plum loves the house and it’s setting by the water, and it’s through the house that she comes to terms with the contradictory feelings she had toward her parents. She is overwhelmed by her parent’s house and it’s contents, but she doesn’t succumb to the temptation to discard and give away their belongings immediately and without thought. She ultimately decides that those items are a curse, but they are also a blessing. “This house I am now slicing apart is theirs – the place that we’d taken for granted would always be here as a backdrop to our lives.” Later, she says, “Now I believe this clearing out is a valuable process – best left to our children. It’s the only way they’ll ever truly come to know us…”

In the end, she acknowledges the truth of what funeral guests tell her: “When your mother dies, you’ll wish you’d asked her some questions.” When it’s too late, she realizes, “Now there are questions I didn’t even know I had.”

 

 

They’re Your Parents, Too! by Francine Russo

They’re Your Parents, Too! by Francine Russo is all too relevant for many baby boomers coping with their aging parents and siblings.

Russo notes that this is the first generation that has had to so frequently manage their parents’ long term illnesses -which may last for decades.  This places a strain on sibling relationships that may already be fraught with unresolved rivalries.  Dysfunctional sibling/parent relationships can be unaddressed for many years only to erupt when everyone is forced to deal with emotional and critical issues.

Some families are able to navigate this very painful terrain, respecting those that have been the primary caregiver(s); many would benefit from a third party such as a social worker or doctor, according to Russo, who has interviewed many, many families. She advises lots of honest communication and attempting to understand the points-of-view of others. It’s never an easy journey, but it can be made bearable if siblings support each other.

Measure of the Heart by Mary Ellen Geist

Alzheimer’s. It’s a disease most of us would rather not think about, much less read about. Still, I’ve just finished reading a lovely book entitled Measure of the Heart: A Father’s Alzheimer’s, A Daughter’s Return by Mary Ellen Geist. Perhaps I was drawn to it because my own mother had Alzheimer’s. Perhaps the black and white photo on the cover brought back memories of me walking with my mom. Still, I approached it with a degree of ambivalence. Did I really want to read this and risk drudging up a very sad time? Well, I’m glad I did. It was not at all depressing, but rather a touching and tender tribute, reinforcing my own experience that caring for our loved ones can be both and a blessing and a privilege.

As I watch the leaves fall to the ground, it seems appropriate that November is National Alzheimer’s Disease Month. If you’re interested in learning more about this affliction, I would recommend The 36-Hour Day by Nancy Mace and Peter Rabins, currently in its 4th edition. This is a virtual bible for caregivers, and one I relied upon heavily.

Another interesting read is Voices of Alzheimer’s, The Healing Companion: Stories for Courage, Comfort and Strength, a compilation of personal anecdotes and experiences, edited by The Healing Project.